Tag Archives: managing stressful times

Mind: Learning from Disability and Disaster.

What can we learn from Hurricane Maria and the long-term loss of both roads and electricity in Puerto Rico and the Caribbean islands? Most of us do not live on an island or area readily isolated from help, yet it … Continue reading

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Spirit/Essay. Of mirrors and marathons. Reflections five years after Hell came home.

It is April in New England, and the marathon has come again. Since 2013, race day is not a simple joy anymore. It is the anniversary of a bombing. It is the day we learned how strong we really were, … Continue reading

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Health Article. The 3 Ds. Disability, Differently-abled, and Disabled.

3-D. DISABILITY, DIFFERENTLY-ABLED, and DISABLED. Three terms we should understand because they may identify almost all of us at some time. Roughly 20% of people live with a disability, an impairment that significantly limits or burdens one or more life … Continue reading

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Essay. Finding gratitude when you don’t feel grateful.

This morning I paused at the foot of the stairs and looked for the mirror that hung there for 23 years. It wasn’t there, just a nail and a bare white wall. We have taught Joseph to come directly to … Continue reading

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Patient Advocacy. Disability and Public Safety II. Communicating Effectively.

Communication relies on reception of another person’s language (to hear or lipread), ability to understand the content of what is said, and two additional steps. The person expected to reply must be able to form a reply mentally and then … Continue reading

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Essay. The Bed-Rail Lesson.

Sometimes all that matters is inside. More often, we find strength and purpose by focusing on what is outside. I can review the last 20 years and mentally mark the years I was hospitalized at least once and the smaller … Continue reading

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Essay. My Life in Pets IV. Teddy and Being Alpha.

I read several books before we got Teddy at 8 weeks. I taped lists on the wall with words he was to learn each week. Because bearded collies were bigger than I had wanted and my fears were kicking in … Continue reading

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Patient Advocacy. When problems arise at appointments or tests.

I started working on principles of patient advocacy after my medical career ended with a head injury and I realized I was not a smart patient. I was passive too long. It took me 5 years to get the second … Continue reading

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Essay. Same Park. Different Dog.

I drove to a nearby park and opened the back of the van. I watched my dog smelling the former country estate and current children’s farm, his nostrils flaring impossibly wide. He sat in his crate, stamping his feet with … Continue reading

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Essay. The Swans. When the ice was a mirror, and birds my only friends.

When Joseph was in an autism preschool, I drove him to and from home because it was only 10 minutes away. On good days, I loaded the dogs in the back and strapped Joseph into his car seat. I left … Continue reading

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